It is shifted to be in the center of the heart instead of being on the left side of her heart.
The second is her Aorta is enlarged and not in the proper place. This VSD causes oxygenated blood (red blood) and deoxygenated blood (blue blood) to mix in the ventricles. This hole also extends into the actual heart tissue a little bit too. The wall the splits the ventricles is called the septum. The first is a large hole called a Ventricular Septal Defect (VSD) in between The two bottom chambers (the ventricles) of her heart.
Owly bean roasters series#
Tetrology of Fallot is a series of four heart defects. So a little about her condition and what it means. Its very easy to forget she isnt a normal baby some days. Claire has never had restrictions on what she could or couldnt do and she has been able to act like and be like a normal baby. As well as help me deal with postpartum stuff and conquering Post Patrum Depression and staying on top of my health and self care through this too. We also have a fabulous home health nurse, Becca, that comes weekly to check Claires height, weight, oxygen sats and development milestones. Miranda and our goal was to make it to 6 months before she needed her surgery. We have monthly scans in Fargo with her Pediatric Cardiologist Dr. Claire has continued to be her best self doing as well as she can with her heart. She was born at 5lbs 6oz and we left the hospital with her weighing 4lbs 15oz.
We were there for 3 days and she had progressed and thrived enough for us to go home. She was a level 2 NICU baby out of 3 levels of intensive care. Luckily our little warrior proved to us again how much of a fighter she was.
Which was very emotional for us as we were told that there was a substantial chance she could come out blue and needing lots of help to breathe and get enough oxygen and again if she struggled too much and required surgery imediately she would be flown out to the University of Minnesota for emergency open heart surgery. I was able to deliver Claire normally with an epidural. We had one labor scare on my birthday January 17th but it turned out to be false labor. We even considered having to stay up there in case I did go into labor the closer I got to my due date. Which meant I had to be very careful not to go into labor. Our hospital near us isnt equiped to handle such a critcal case.
The option to go into labor naturally wasnt an option becuase of how critical she could be when she arrived.
Owly bean roasters full#
When I was scheduled to induce at full term. By the grace of God we were able to hold off till 38 weeks. We then had to go to weekly monitoring and be prepared to be induced that day if she had declined more. In January when we were at 35 weeks Claire started declining and we almost had an emergency induction. We had to travel to the main hospital in Fargo to meet with maternal fetal medicine as well as the pediatric cardiologist to preform in depth scans of her growth and development, the placenta, as well as extensive pictures and mesurements of her heart. This required us to have monthly ultrasounds and monitoring for the remainder of the pregnancy. October 18th 2021 we had our 20wk fetal scans and it showed Claires heart defect which is called Tetrology of Fallot with severe pulmonay stenosis and a right coronary anomaly. Hi Everyone! Heres a little overview on Claires story up to her posts started on here! buckle up for the ride!
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